I called social security to ask what was up with my hearing. "Well they're in the process of getting ready to schedule your hearing." "And what's the time frame on that?" "Well there is no time frame." "So it could be 3 months? 6 months?" "Yes." Amazing. I'm feeling super discouraged about that. I basically feel like it's NEVER going to happen and I need to stop waiting.
I feel like crap lately. I'm back to where I was a year ago where I'm throwing up after pretty much every single meal. Last year we added dicyclomine and budesonide and those made a huge difference. But I'm maxed out on those meds and am now back to the puking thing. And I have no GI doctor or hematologist right now because I fired my GI doctor for being quasi-incompetent and my hematologist moved across the country. My primary care doctor is great, but he just lacks the knowledge needed to deal with the curve balls this disease throws.
My son has been having worrisome symptoms lately. Yesterday he broke out in this rash all over his back after lunch.
=( It was gone by bedtime. But man, anything like that makes me worry so much. Went and saw the doctor today and we're off for allergy testing "Especially considering family history." Sigh. I will never escape the mommy guilt that maybe I've ruined my kids by passing on bum-genes to them.